Copay help by condition · Neurological and neuromuscular · read 2026-11-08

Spinal muscular atrophy (SMA): which charitable copay funds are open

2 funds for Spinal muscular atrophy say it is open right now, of the 3 we hold (read 2026-11-08).

Open: Spinal muscular atrophy (SMA) from TotalAssist (Patient Advocate Foundation copay funds) and Spinal muscular atrophy (SMA) health equity from TotalAssist (Patient Advocate Foundation copay funds). Eligibility is each fund's own rule.

If you have Medicare Part D: CMS prints the annual out-of-pocket threshold as $2,400 in 2027 ($2,100 in 2026) (Table V-2 of its CY 2027 announcement). It is a benefit parameter and applies to covered drugs under plan rules. What changes on January 1.

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Funds we hold for Spinal muscular atrophy, by the status each page gave on the day we read it.

What this is not. A record of what fund pages and FDA labels say, not advice and not a check of whether you qualify. US funds only. This page covers charitable funds from the organizations we read, the costs around a condition those funds pay for, and the drugs whose FDA label names the condition. A label naming a condition is not a statement that the drug is approved, effective or covered for you.

A copy for a patient, a clinic or a pharmacist, with each source and the date we read it.

Every fund we hold for Spinal muscular atrophy

OpenSpinal muscular atrophy (SMA)

TotalAssist (Patient Advocate Foundation copay funds) · read 2026-11-08

Award level: $6,500Insurance supported: Any health insurance

The page lists the fund as Open. Source page
OpenSpinal muscular atrophy (SMA) health equity

TotalAssist (Patient Advocate Foundation copay funds) · read 2026-11-08

Award level: $6,500Insurance supported: Any health insurance

The page lists the fund as Open. Source page
Closed or at capacitySpinal Muscular Atrophy

Good Days · read 2026-11-08

Award level: not statedInsurance supported: not stated

The page marks the fund as not currently open for new enrollments (the fund's list item on the page carries the class closed). Source page

Drugs whose FDA label names Spinal muscular atrophy

1 drug. Each row quotes the sentence of the drug's FDA label (Indications and Usage, openFDA) that names the condition. A label naming a condition is not a statement that the drug is approved, effective or covered for you. Dashes in quotes are shown as hyphens. Of these, 1 has a program (in our assistance finder or on the program's own page) and 0 have a Medicare negotiated price in the CMS file; an empty cell says we found nothing in our data, not that nothing exists.

Drug	What the FDA label says	Manufacturer program	Medicare negotiated price
Evrysdi Risdiplam Every route for this drug	EVRYSDI is indicated for the treatment of spinal muscular atrophy (SMA) in pediatric and adult patients. Label on openFDA, read 2026-11-10	Genentech Patient Foundation	not in the CMS negotiated-price file

No broader or more specific condition page for this one.

Group: Neurological and neuromuscular. All conditions: the condition index. Fund board for every condition: charitable copay fund status.

What changed

First read on 2026-11-08. We keep each read with its date, so a fund reopening or closing will show here as a change. Until we have a second read there is nothing to compare, and we do not guess. The read date of every source is on the changes page.

This page as data

The same facts as JSON, each fund with its source URL and read date: spinal-muscular-atrophy.json. Edition 2026-11, root 006ab9a329709cbe. See the licence page.

Questions

Is there an open charitable copay fund for Spinal muscular atrophy?

As read on 2026-11-08, 2 of the 3 funds we hold for Spinal muscular atrophy say they are open: Spinal muscular atrophy (SMA) from TotalAssist (Patient Advocate Foundation copay funds) and Spinal muscular atrophy (SMA) health equity from TotalAssist (Patient Advocate Foundation copay funds). Funds open and close, so check the source page before you apply.

Which organizations run funds for Spinal muscular atrophy?

TotalAssist (Patient Advocate Foundation copay funds) and Good Days. Each fund row on this page links to the organization's own page.

Does an open fund mean I qualify?

No. A status says whether a fund is taking applications. Eligibility, award level and which insurance it supports are each fund's own rules; where the page states them they are shown on the fund.

How current is this page?

Statuses are what each fund's own page said on the date we read it (2026-11-08). We do not promise a fund is still in that state today.